Losing My Religion

First I will preface this by saying I was baptized but it ends there, my faith is not based in an institution or tradition.

“R.E.M. ‘s hit song came out in 1991. “Losing my religion” is actually an old southern expression for being at the end of one’s rope, and the moment when politeness gives way to anger. But if you were missing that key detail, you’d think that lead singer Stipe’s vague imagery was clearly a comment on the Judeo-Christian tradition.” If I wanted to project…. the words to this song make it easy, and my brother and his life, and my life. Watch the video, listen to the words of the song and have a good cry. That is what happened to me this morning, I turned on the radio in the car and this song was on, I lost it. The coincidences of life are stunning. The video is linked below.


https://youtu.be/xwtdhWltSIg


Earlier this week trying to be present with my brother, I asked him if he wanted to listen to some music and he says sure and lists these groups, The B’52’s, R.E.M. and Jane’s Addiction. We, together loved these groups and their songs. I haven’t heard R.E.M. in years, until this morning. I play Dance this Mess Around from B’52’s, he actually bobbed his head for a few and we don’t even get to finish the song as his needs, the reason of why he is in the hospital, take over. I am in Florida and my brother is in ICU and has been since last Friday. Yesterday, unexpectedly as these things are never expected, the doctor tells me to my face, there is nothing else, medically, they can do for Joe. He is dying- my words. I won’t list all of what is wrong but all of it is because of alcoholism, which has caused liver failure. The sweetness is all I can see in my brother’s face and eyes even though he is in the most terrible of physical condition.

So how does one process being told “this is it”? I am numb. He knows, that yes, it is true, this is his last life. Time to go home Mr. Kitty with multiple nine lives. Your last life has been lived. My heart is broken. Joe signed his DNR papers today and he began the process of Hospice. As I write this he is being moved to “in hospital” Hospice care. Our mother also signed the papers. Do you hear me…his mother, our mother signed Hospice papers for her son.



My husband, Luis, my boys, my cousin’s boys and of course my brother in the back being goofy. Adoni’s face is for the fact that his face was literally in my husband’s armpit. 2019.

I stayed at my cousin’s last night, my mother needed some privacy. Our conversation went like this. We talk about many things, mostly our boys and how we are raising them. All our boys are in the picture above. We talk about my brother becoming the poster boy for alcoholism. I cry. We talk about the fact …this hurts too- she and my best friend both lost their brothers when we were young. My childhood best friend’s brother died in 1991, same year the R.E.M. song came out. My cousin died when we were senior’s in higschool, 1987. Why they each died is tragic and I can write about later. RIP, cousin Alan and family friend, Jared. We talk about the finality of her brother’s death and my friend’s brother’s death. It isn’t new information about how difficult these years have been for me concerning my brother. Their brothers are dead and mine is alive and stuck in addiction. It has been hard raising a family without my brother, without their uncle, without his brother in law, only for Joe to be present for little fleeting moments and always under the influence of alcohol. I didn’t loose my brother physically but I lost him emotionally to alcoholism years ago.


My brother and Adoni in Dominican Republic. My brother is a kid at heart. 2009

The nurse in the ICU today wanted to give me a hug so I let her (um Covid-19) and I sobbed. We talked about generational alcoholism. She stressed and emphasized self care and showing my children, my boys, what self care is. Which brings me back to my conversation with my cousin last night. Our boys are 12 and 14, they are coming of age. They need to know better what self-care is and how to do it correctly. Learn to recognize when there is something wrong and deal with it as negative self soothing is not the answer. I want my boys to know it is ok to be vulnerable in manhood.

The R.E.M. video shows the lead singer as vulnerable, in fact all the men and boys in the video are vulnerable. This week we have seen my brother’s vulnerability, us 3 women he cares for the most, his girlfriend, me and his mother. Allowing us to see him in the condition that he is in, seeing his acceptance of his fate, he said to me, “I did this to myself”, and him signing the Hospice papers has to be the bravest and most painful task he has ever had to do in his life.


Maybe 1989. Joe with our maternal grandmother, Rena. He loved her dearly. I shot this photograph at the beginning of my photographic education/career.

Perspective

Adoni enjoying Grand Canyon.

It has been a year since we traveled to Arizona, a birthday wish of mine. I said “mine”. My family wanted to go. They were super excited about doing something we have never done before. But truth and reality certainly out way my romanticized view of this beautiful place. A photographer and artist at heart, even a naturalist, I have lived through an artist’s perspective of this place. However, I want to talk about my son’s experience.


Adoni’s notes after we returned from Arizona.
He did have a good time but chose to focus on the hard parts for him to digest. I did the little sketch. That is his handwriting.
May, 2019.

This week, when I asked Adoni to remember our trip and some of his favorite parts he said he didn’t have any good memories. His most profound memory was about the pain he felt. We were told by the tour guide about the number of people who died in the previous of months. It was shocking. This statement put the fear of God in all of us but mostly my husband. I will not throw my husband under the bus right now and blame him. However, I will say his love and desire to keep our wildest child safe hindered Adoni’s experience in Adoni’s mind. Adoni still can’t formulate a full intellectual response, but he said “you guys wouldn’t let me see anything, you embarrassed me”. He can detail the exact moment and movements that lead up to Luis’ fight or flight response to Adoni’s actions.

Last day of our trip, Sedona, Arizona

As I am the one homeschooling the kids and Luis is out bringing in the income, I am the one who is adventurous, leading the kids out in nature. What I don’t get about Luis’ fears and concerns with Adoni is that Luis grew up a free and wild child himself. My guess is that he had the village always looking out. We don’t have the village. Either way I have allowed Adoni to explore in a way that pushed me, heightening my own fears. This gave him freedom to grow emotionally and physically, to learn boundaries. That trust was missing while we were in Arizona. Factor in the fact that we haven’t traveled as a family to unknown places. This was a huge learning experience for Luis- HUGE.

I shared his notes with him. He smiled and thought about these moments. He had forgotten and he said so. He admitted that his best memories were being with his cousins.